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Community Engagement & Outreach Core

Community-engaged research in Delaware.

We help residents, patients, organizations, and researchers plan studies, review materials, find partners, and share results.

Tell us what you need, and we will direct your request.

Listen
Partner
Act

Community input throughout the research process.

About this work

What community-engaged research means

Community-engaged research brings community knowledge into decisions about research priorities, study design, participation, and sharing results.

The Accelerating Clinical and Translational Research (ACCEL) Program supports researchers and community partners at any stage of that work.

accel partner institutions
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Screenshot 2026-08-10 at 3.48.08 PM
for delaware community members

Ways to participate

Community members contribute knowledge from their families, neighborhoods, organizations, and lived experience.

Please do not include private medical details in an email. A brief topic or question is enough to start.

For researchers and organizations

Support for research teams and organizations

Begin with the 50-minute Community-Engaged Research 101 training or request a one-on-one consultation with an experienced community-engaged researcher.

Request Community-Engaged Research 101

How we help

Community-engaged research services

Services are matched to the stage of your work. We will help identify the people, process, and resources needed.

01

Researchers and Organizations

Plan community involvement in a study

Identify who should participate, when to involve them, and which decisions they will help make.

02

Research teams

Plan an advisory group

Plan membership, compensation, meetings, expectations, and how recommendations will be used.

03

Research teams

Review study materials

Get practical feedback on questionnaires, recruitment messages, consent language, and other materials before they reach the community.

04

Researchers + partners

Prepare plain-language results

Prepare findings for participants, partners, and Delaware communities.

05

Everyone

Identify community or research partners

Discuss shared interests, potential partners, and realistic roles.

06

Everyone

Address social & structural determinants of health

Consider how housing, income, transportation, access to care, and other social & structural determinants of health affect participation and outcomes.

Available Support

Services and programs

Each item explains what the service includes and how to request it. The team will route requests that involve more than one service.

One-on-one consultation

Discuss an engagement question, an early idea, or a study already underway. The consultation can identify options, partners, or next steps.

Best for: research teams and community organizations.

Request a consultation

What happens after a request

1

Describe the request. Share the stage of the work, audience, timing, and any access needs.

2

Review fit. The team identifies the appropriate people and any preparation or resource requirements.

3

Confirm scope. Timing, deliverables, and whether any cost applies are confirmed before you commit.

4

Document next steps. Recommendations and follow-up actions are recorded.

Before you request support

Who can request: researchers across the translational spectrum and community partners connected to Delaware health research.

What you will receive: a named contact, recommended next steps, and relevant tools or referrals.

Prepare a short note with:

  • Your project stage and the decision you need to make
  • Community relationships and materials you already have
  • Your deadline, access needs, and desired output
Community guidance

Community Advisory Council

Council members advise this core and the ACCEL Program. Their experience includes libraries, faith communities, public health, education, and neighborhood organizations.

We value lived and professional experience as expertise. Council members are compensated for their time.

Council members help to:
Translate research into plain, useful language
Carry information between researchers and communities
Point out barriers that keep research from reaching people
Strengthen trust and shared decision-making
Move useful findings into community networks and action
Ask to join or attend the Community Advisory Council →

Contact us for current details on compensation, expenses, meeting format, participation, and membership.

Current Council members

Gwendoline B. "Gwen" Angalet, PhD

Council Chair

La Vaida Owens White, MSN, RN, FCN

ANHE Fellow

Alta M. Porterfield

Delaware Libraries

Terry-Ann Richards

Community Advisory Council

Alexandra Wynn

Delaware State Health Improvement Plan

Participate in research

Before you join a research study

You can learn about a study before deciding whether to join. The research team should explain the purpose, time, activities, possible risks and benefits, privacy protections, and any compensation. Study compensation, if offered, varies by study.

Your rights in research

Participation is voluntary. You may ask questions before deciding, and you may stop according to the study's consent information. Every study should provide contacts for questions about the study and about participant rights.

Research stories

Examples of community-engaged research

Each summary identifies the community contribution and the resulting change.

year 8
Peer support for adults living with sickle cell pain
Stephanie Guarino and community partners

Community contribution: Patients, caregivers, and clinicians identified priorities for an adapted program.

What changed: Their input shaped peer-led pain self-management support for Delaware adults living with sickle cell disease.

year 7
Understanding community violence and health
David Chen, Yasser Payne, and community researchers

Community contribution: Community-based researchers helped interpret survey findings in local context.

What changed: Wilmington residents' perspectives informed how violence exposure and quality-of-life findings were understood and shared.

year 4
Psychological care for families of children with heart disease
Erica Sood, Erin Riegel, and partners

Community contribution: Caregivers identified support gaps and practical needs during and after hospitalization.

What changed: Their priorities shaped recommendations for psychological care during a child's hospital stay and transition home.

Resources

Community-engagement guides and tools

Community

People connected by place, experience, identity, interest, or a shared health concern. Communities define their own membership and priorities.

Community-engaged research

Research carried out with community influence and partnership, with engagement that can range from consultation to shared leadership.

Community-based participatory research

A collaborative approach in which community and academic partners share ownership of decisions, work, and results.

Resource links reviewed September 2026.

team

Core leadership and members

Members come from four ACCEL partner institutions across Delaware.

chen
Core Co-lead
David Chen, MD, MPH

Physician Scientist, Institute for Research; Founder and Medical Director, Empowering Victims of Lived Violence, ChristianaCare

Alison Karpyn, College of Education and Human Development.
(Release was obtained.)
Core Co-lead
Allison Karpyn, PhD

Human Development and Family Sciences; Co-Director, Center for Research in Education and Social Policy; Director, Collaborative for Data Driven Action, University of Delaware

Core Members

Omar Khan, MD, MHS, FAAFP

ChristianaCare

Deborah Knight, RN

Delaware State University

Alexandra Mapp, MPH

ChristianaCare

Abby Nerlinger, MD, MPH, FAAP

Nemours Children's Health

Bianca Nugent-Whyte, MSN, RN

Delaware State University

program direction

Program aims

01

Support clinical and translational research that addresses diverse community health needs and social & structural determinants of health.

02

Recruit and train clinicians and scientists to conduct clinical and translational research shaped by community needs.

03

Expand community engagement and outreach programs with Delaware agencies and community partners to promote health and well-being.

Contact this core

Contact the Community Engagement & Outreach Core

A short note is enough. Include whether you are a community member, researcher, student, health professional, or organization; the decision you are facing; and any timing we should know about.

Need information in another format or language? Include that in your message so the team can plan an accessible response.

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Community Engagement & Outreach Core

David Chen, MD, MPH

DChen@ChristianaCare.org

Core co-lead

Allison Karpyn, PhD

karpyn@udel.edu

Core co-lead

Lacey Long

Lacey.Long@christianacare.org

Project Manager

Share your timing and access needs. The team will confirm next steps and availability in its reply.

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